InfoGuides: Health Statistics &amp; Data: Find Data Sets

Find Data Sets

AHA Annual Survey Database This link opens in a new window
Census of United States hospitals based on the AHA Annual Survey of Hospitals. Download survey data for analysis in Excel, SAS and other statistical software packages. Note: Limited years available to Mason students, staff and faculty.
AHA Annual Survey Information Technology Supplement Database This link opens in a new window
Contains current survey data on healthcare technology adoption and indicators in response to the Health Information Technology for Economic and Clinical Health (HITECH) Act. Download survey data for analysis in Excel and statistical software packages. Note: Limited years available to Mason students, staff and faculty.

ICPSR
Inter-university Consortium for Social and Political Research offers more than 500,000 digital files containing social science research data. Disciplines represented include political science, sociology, demography, economics, history, gerontology, criminal justice, public health, foreign policy, terrorism, health and medical care, early education, education, racial and ethnic minorities, psychology, law, substance abuse and mental health, and more.

Sage Data This link opens in a new window
Provides access to statistical data produced by U.S. Federal agencies, States, private organizations, and major intergovernmental organizations. Charts, maps, views, rankings, time series and tables are available for use in the Sage Data repository. Sage Data offers capabilities to compare & contrast multiple data series, perform statistical calculations on the data, and customize output views.

Medicare Health Outcomes Survey (HOS)
The Medicare HOS was the first patient-reported outcomes measure used in Medicare managed care. The goal of the Medicare HOS program is to gather valid and reliable clinically meaningful data that have many uses, such as targeting quality improvement activities and resources; monitoring health plan performance and rewarding top-performing health plans; helping people with Medicare make informed health care choices; and advancing the science of functional health outcomes measurement
Health & Medical Care Archive (HCMA)
Data archive of the Robert Wood Johnson foundation

Sociometrics This link opens in a new window
Select 'Institutional Subscribers" to access data.

Integrated Public Use Microdata Series (IPUMS) IPUMS provides census and survey data from around the world integrated across time and space. IPUMS integration and documentation makes it easy to study change, conduct comparative research, merge information across data types, and analyze individuals within family and community context. Data and services available free of charge.

The Surveillance, Epidemiology, and End Results (SEER) Program of the National Cancer Institute (NCI) is an authoritative source of information on cancer incidence and survival in the United States. SEER currently collects and publishes cancer incidence and survival data from population-based cancer registries covering approximately 30 percent of the US population.

HealthIT.gov Data Includes Apps,Quick Stats, Data Briefs and Data Sets

HealthData.gov Data from Department of Health and Human Services vaults (from CMS, CDC, FDA and NIH, to name a few sources) includes clinical care provider quality information, nationwide health service provider directories, databases of the latest medical and scientific knowledge, consumer product data, community health performance information, government spending data and much more.

Medical Expenditure Panel Survey Data Sets (MEPS) a set of large-scale surveys of families and individuals, their medical providers, and employers across the United States. MEPS is the most complete source of data on the cost and use of health care and health insurance coverage.

Research Data Center of CDC allows researchers access to restricted data. Today, in addition to providing access to NCHS data, the RDC also hosts restricted data from a variety of groups within the Department of Health and Human Services (HHS). Forms to submit a proposal for access are on the site.

Public-Use Data Sets from National Center for Health Statistics Includes National Health and Nutrition Examination Survey (NHANES), and National Vital Statistics, and more

SWAN Study of Women's Health Across the Nation The SWAN Public Use Datasets provide access to longitudinal data describing the physical, biological, psychological, and social changes that occur during the menopausal transition. Data collected from 3,302 SWAN participants from Baseline through the 10th Annual Follow-Up visit are currently freely available to the public.

California Health Interview Survey comprehensive statewide CHIS data files on a variety of topics. Public Use Files (PUFs) enable researchers to customize and run their own data searches. The files are available in a variety of data formats, including SAS, SPSS, and STATA data formats. Free registration is required.

Global Health Data Exchange List of open data sites by country compiled at University of Washington

National Center for Health Statistics, CDC Public Use Data Files Includes National Health Interview Survey, National Ambulatory Medical Care Survey, and more

data.HRSA.gov includes data on organ transplantation and donation, underserved areas

Kaggle Datasets Explore, analyze, and share community published data.

EMS State level data The National Emergency Medical Services Information System (NEMSIS) is the national database that is used to store EMS data from the U.S. States and Territories

Subject Guides from DDSS (Digital Scholarship Center)

Text & Data Mining Access text and data mining best practices, sources, and tools.

Collect Data with a Survey Resources for learning about and conducting public opinion and other research surveys, including recruitment, questionnaire design, and online survey software.

SAGE Research Methods and Cases Online This link opens in a new window
Provides an overview of research methods (quantitative, qualitative and mixed methods) across the social and behavioral sciences. Includes SAGE book and reference material on research methods, and editorially selected material from SAGE journals. Also includes a searchable collection of case studies of real social research, commissioned and designed to help users understand abstract methodological concepts in practice.

Statista This link opens in a new window
Integrates more than 80,000 diverse topics of data and facts from over 22,500 international sources. Includes statistics and studies gathered from market researchers, trade organizations, scientific publications, government sources and international organizations. Create graphs, reports and infographics. Data is easily exportable for analysis. Statista reports now allow you to create your own interactive industry comparisons with Tableau Workbook. Find the free tool here or via https://www.tableau.com/trial/statista-benchmark-report-uk.
ProQuest Statistical Insight This link opens in a new window
Find all statistics issued by the US government since 1973; 1000 of the best statistical publications of private and state government sources and approximately 2000 titles from international agencies. Includes Statistical Abstract of the U.S., and Statistical Abstracts of the World.
Kaiser Family Foundation This link opens in a new window
Global and domestic health data, policy analyses, and in depth policy news coverage maintained by the Henry J. Kaiser Family Foundation. Search state and global health facts databases covering HIV/AIDS and other diseases, as well as key health and socio-economic indicators. Includes infographics, interactive data, video and additional formats.

Public Tier through the All of Us Data Browser includes Electronic Health Records Domains (conditions, drug exposures, lab results, procedures), Genomics, Physical Masurement and Wearables, and Survey Questions.

Data Snapshots show demographics of participants including age, race & ethnicity, and gender identity.

Registered Tier and Controlled Tier require access through NIH approval process to use the Researcher Workbench.

The Research Projects Directory describes all the active projects on the Researcher Workbench.

Publications that use All of Us data are listed and updated here.

Mason Research using All of Us

HAP 823 http://openonlinecourses.com/causalanalysis/default.html

All of the following listed projects use patient's medical history to screen for the indicated disease. The recommendation for screening that emerges from these projects differs radically from the recommendation of US Preventive Services Task Force. The Task Force has systematically ignored how data in EHRs can be used to improve screening. The projects listed here are pilot studies designed to understand the nature of the data. Some of these projects have low percent of variation explained, which suggests alternative analysis is necessary. For more completed published studies, please use PubMed. All of these pilot projects use data from All of Us database. All of these projects construct network models, through regression analysis.

§ Diabetes YouTube►

§ Leukemia YouTube►

§ Congestive heart failure YouTube►

§ Hypertension YouTube►

§ Hip fracture YouTube►

§ Breast cancer YouTube►

§ Depression YouTube►

All of Us Research Hub
NIH will store health data from a diverse cohort of one million or more participants in the All of Us Research Program. Includes Electronic Health Records, Biosamples, surveys and more. Apply for access as a researcher here https://www.researchallofus.org/apply/