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Health Statistics & Data

Resources for Virginia health data, hospital data, disease data

Find Data Sets

Image of all of us website

Public Tier through the All of Us Data Browser includes Electronic Health Records Domains (conditions, drug exposures, lab results, procedures), Genomics, Physical Masurement and Wearables, and Survey Questions.

Data Snapshots  show demographics of participants including age, race & ethnicity, and gender identity.

Registered Tier and Controlled Tier require access through NIH approval process to use the Researcher Workbench.

The Research Projects Directory describes all the active projects on the Researcher Workbench.

Publications that use All of Us data are listed and updated here.

 

Mason Research using All of Us

HAP 823  http://openonlinecourses.com/causalanalysis/default.html 

All of the following listed projects use patient's medical history to screen for the indicated disease. The recommendation for screening that emerges from these projects differs radically from the recommendation of US Preventive Services Task Force. The Task Force has systematically ignored how data in EHRs can be used to improve screening.  The projects listed here are pilot studies designed to understand the nature of the data.  Some of these projects have low percent of variation explained, which suggests alternative analysis is necessary. For more completed published studies, please use PubMed. All of these pilot projects use data from All of Us database. All of these projects construct network models, through regression analysis. 

§  Diabetes YouTube►

§  Leukemia YouTube►

§  Congestive heart failure YouTube►

§  Hypertension YouTube►

§  Hip fracture YouTube►

§  Breast cancer YouTube►

§  Depression YouTube►

  • Integrated Public Use Microdata Series (IPUMS)   IPUMS provides census and survey data from around the world integrated across time and space. IPUMS integration and documentation makes it easy to study change, conduct comparative research, merge information across data types, and analyze individuals within family and community context. Data and services available free of charge.
  • The Surveillance, Epidemiology, and End Results (SEER) Program of the National Cancer Institute (NCI) is an authoritative source of information on cancer incidence and survival in the United States. SEER currently collects and publishes cancer incidence and survival data from population-based cancer registries covering approximately 30 percent of the US population.
  • HealthIT.gov Data Includes Apps,Quick Stats, Data Briefs and Data Sets
  • HealthData.gov    Data from Department of Health and Human Services vaults (from CMS, CDC, FDA and NIH, to name a few sources) includes clinical care provider quality information, nationwide health service provider directories, databases of the latest medical and scientific knowledge, consumer product data, community health performance information, government spending data and much more.
  • Medical Expenditure Panel Survey Data Sets  (MEPS)  a set of large-scale surveys of families and individuals, their medical providers, and employers across the United States. MEPS is the most complete source of data on the cost and use of health care and health insurance coverage.
  • Research Data Center of CDC allows researchers access to restricted data. Today, in addition to providing access to NCHS data, the RDC also hosts restricted data from a variety of groups within the Department of Health and Human Services (HHS). Forms to submit a proposal for access are on the site.
  • Public-Use Data Sets from National Center for Health Statistics Includes National Health and Nutrition Examination Survey (NHANES), and National Vital Statistics, and more
  • SWAN Study of Women's Health Across the Nation  The SWAN Public Use Datasets provide access to longitudinal data describing the physical, biological, psychological, and social changes that occur during the menopausal transition. Data collected from 3,302 SWAN participants from Baseline through the 10th Annual Follow-Up visit are currently freely available to the public. 
  • California Health Interview Survey   comprehensive statewide CHIS data files on a variety of topics. Public Use Files (PUFs) enable researchers to customize and run their own data searches. The files are available in a variety of data formats, including SAS, SPSS, and STATA data formats. Free registration is required.
  • Global Health Data Exchange  List of open data sites by country compiled at University of Washington
  • National Center for Health Statistics, CDC  Public Use Data Files  Includes National Health Interview Survey, National Ambulatory Medical Care Survey, and more
  • data.HRSA.gov includes data on organ transplantation and donation, underserved areas
  • Kaggle Datasets Explore, analyze, and share community published data.
  • EMS State level data  The National Emergency Medical Services Information System (NEMSIS) is the national database that is used to store EMS data from the U.S. States and Territories
  • Text & Data Mining Access text and data mining best practices, sources, and tools.
  • Collect Data with a Survey Resources for learning about and conducting public opinion and other research surveys, including recruitment, questionnaire design, and online survey software.